He's 4, my mighty one. and already he carries too heavy of a burden as a special needs sibling. He's perceptive and reads situations and emotions better than most adults. He loves his brother and already has taken on the emotional weight of being a helper and protector. Don't misunderstand. He is so very normal too. He loves, laughs, fights (way too much...) and yells at his brother … [Read more...]
The hardest parts within the complexities of special needs parenting are the every day ones. The moments where I simply don't know WHY he's having a meltdown. Language complications worse than foreign or cultural barriers because he's MINE and my family and I want to help him better. His words don't make sense, each individual one does, just not all strung haphazardly together … [Read more...]
we are CALLED to more than we CAN do. I've been working on this post for almost a month now, it's not been ready and there is still a lingering feeling of incompletion, but sometimes it's good to post from a place of not-quite-ready. This is such a small part of where I am but it's been a persistent splinter in my finger, causing shooting pains at whatever I have touched. It's been … [Read more...]
If part of grieving is healing through acceptance, than perhaps I’m there. I realized the other day that I have never officially posted a whole article about Williams Syndrome or had a label on my blog for it until recently. Some people, I have become aware of, come to my blog to read about Summit (or Bear as I call him in some posts) and William’s Syndrome and how I’m dealing with life as … [Read more...]
