I got to spend the day with some amazing people. Have you ever had a moment where you exclaimed, "I wish I could have been a fly on the wall!" Well today was that for me. I attended the 99 Balloons Engage Disability conference today in Fayetteville and was simply blown away by the passion and enthusiasm of these people. At one point (ok, like most of the day) I was choking back tears to be in … [Read more...]
The hardest parts within the complexities of special needs parenting are the every day ones. The moments where I simply don't know WHY he's having a meltdown. Language complications worse than foreign or cultural barriers because he's MINE and my family and I want to help him better. His words don't make sense, each individual one does, just not all strung haphazardly together … [Read more...]
we are CALLED to more than we CAN do. I've been working on this post for almost a month now, it's not been ready and there is still a lingering feeling of incompletion, but sometimes it's good to post from a place of not-quite-ready. This is such a small part of where I am but it's been a persistent splinter in my finger, causing shooting pains at whatever I have touched. It's been … [Read more...]
Heat lightning crackled in the sky, a large strip of it visible to the left of where I was sitting under the large tent. The deep ocean colors swirled in the layers of clouds moving high up, cool breezes occasionally glancing down upon us below, the sticky, sweaty ones. There would be a quick intake of breath, sitting up taller as if our spines were shocked, our heads tilted towards it, inhaling … [Read more...]
