Since I’ve already blogged a little about all the things that are going on with Summit- by “little” I mean verbally vomited up everything that I am feeling regarding this- I feel it only fair to give you a sense of closure regarding this. Well, somewhat of a closure, more of a sense of beginning. We have a confirmed diagnosis, the lab called yesterday to tell me. Instead of 2-3 weeks, they had it back in 6 days! We were surprised and it was nice to know sooner rather than later. We are going back to LR Childrens’ to hear more about it and hear the current and future health risks involved with the diagnosis. Although there are certain health issues that are potentially bad, now that we know about it the likelihood of anything happening is much less. He will continue in his therapies and so day to day life is still the same.
Although there is a sense of relief somewhat in knowing this, at the same time there is a huge hole in my heart where the hope had been residing. Please don’t think you need to be positive or say the right thing. Like I said, the best thing anyone has said was “That really sucks!” because it does. There have been several ‘worst’ comments made, but I understand that people just don’t know what to say sometimes and I can see the loving intent behind the comment. I was going to post the results here, but after some consideration was made, due partially to some of the comments, we’ve decided to keep this more of a private family matter. This goes against who I am, I am a tell everyone everything kind of person, honestly, etc. but this isn’t about me. I don’t want people to treat Summit differently. He is still the same baby that people love and who he loves and who very few people even suspected there were problems. So thanks for all the prayers and thoughts for us, we really appreciate it!